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Subject:
From:
Tom Kindlon <[log in to unmask]>
Reply To:
Tom Kindlon <[log in to unmask]>
Date:
Wed, 26 Dec 2012 21:55:14 +0000
Content-Type:
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I have previously highlighted that there was a secondary outcome
measure for recovery in the protocol for the £5m (taxpayer-funded)
PACE Trial. However, a recent FOI request to Queen Mary, where Peter
White is based, has revealed that the investigators do not intend to
publish this data, nor release it to the person who made the FOI
request.

There were three lead investigators in the PACE Trial, Peter White,
Trudie Chalder & Michael Sharpe. I have previously highlighted how
Peter White has recently (in a 2012 document) made recovery claims for
the therapies.

This is an extract from a brochure for the service where Trudie
Chalder is based (she is featured). This centre was one of the centres
used in the PACE Trial. This is a April 2011 document (i.e. after the
Lancet paper on the PACE Trial was published). [Aside: other people
featured are Simon Wessely & Alastair Santhouse]

Tom
(@TomKindlon)
------------------

 http://bit.ly/12PB5Q5 i.e.
https://www.national.slam.nhs.uk/wp-content/uploads/2011/05/Chronic-Fatigue-Service.pdf

Chronic Fatigue Service Providing expert assessment and treatment for
people with chronic fatigue syndrome

[..]

Many people we see have been told that their symptoms don’t exist and
some have been given negative messages about the possibility of
improvement and recovery.

The focus of our approach is to improve the quality of people’s lives,
reduce their fatigue and help them to fully engage in life.

Our dedicated team offer cognitive behavioural therapy (CBT) and
graded exercise therapy (GET) which are tailored to the needs of each
person.

Treatment is effective, with around 65% of people improving with
either CBT or GET, and around 25% of people making a full recovery.

[..]

FAMILY AND CARERS
›› Involvement in treatment
›› Advice and support on how to help with recovery
›› Education about CFS or fatigue associated with long-term health conditions

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